Our MISSION

 

 

Our mission at TEAM LUCA is to elevate awareness of cystic fibrosis and to fund its cure.  

 

Cystic fibrosis (CF) is a life-threatening genetic disease that primarily affects the lungs and digestive system.  An estimated 30,000 children and adults in the United States (70,000 people worldwide) have CF.  In the 1950s, few children with CF lived to attend elementary school.  Since then, tremendous progress in understanding and treating CF has led to dramatic improvements in the length and quality of life for those with CF.  Many people with the disease can now expect to live into their 30s, 40s and beyond.

 

 

At TEAM LUCA,

 

 

We believe that our mission will be accomplished as a Team.

We believe that positive energy and determination are contagious.

We believe that exercise strengthens not only our bodies but our resolve as well.

We believe that cystic fibrosis can be cured in our lifetime.

 

We want to elevate awareness.

We want to fund the cure.

We want to BEAT CF.

 

OUR TEAM

We are parents.  We are brothers and sisters. We are family.

We are old friends and new friends.

 

Cystic fibrosis does not define who we are.  We will define CF.  

 

We are TEAM LUCA

and we won’t stop...

 

working

running

fighting

studying

researching

trying

 

until everyone with cystic fibrosis is cured.


It’s time to BEAT CF.

 

60660427_2456247844399687_22177856011412

"Luca the Lion"

 

On April 9th, 2014, Luca was diagnosed with cystic fibrosis.  He was 2 weeks old.  But Luca is a fighter.  He always has been.  Today, Luca is 8 years old.  He takes over 6,000 pills per year.  He uses an inhaler twice a day.  He breathes nebulized medicine for 15 minutes...twice a day.  He wears a high frequency oscillating vest for 20 minutes...twice a day.  Every day.

He doesn't complain.  He doesn't fuss.  

He smiles.  He climbs.  He runs.  He laughs....and he roars.  When he was 2 months old, Luca started to roar; he started to growl....and he's never stopped.  He is telling us all something.

If we can muster that same strength that Luca demonstrates every day, we can BEAT CF.  

MMG_1450.jpg